tag:blogger.com,1999:blog-87379524637545647532024-03-12T17:03:39.439-05:00John's TumorThis blog is all about how I how used humor to remain sane while dealing with the insanity of a brain tumor the size of my wife’s fist. Why blog? To help other folks cope with serious health issues/brain tumors/cancer and give anybody wading through the muck of rehabilitation some hope or at least a chuckle or two. It will include a vaguely chronological story, books reviews, presentations to rehab patients, etc.John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.comBlogger509125tag:blogger.com,1999:blog-8737952463754564753.post-8590814134706870642016-09-21T16:27:00.003-05:002016-09-26T11:00:36.598-05:00“New Report Shows Brain Cancer is Deadliest Childhood Cancer”<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrpV9ZJcx0u_17P5NMIJ4K-qxYaYxTLc6P4e7ozUEEIm1LBYR-Adn7OHqrys_P8p-WBmaaYdcv4ULiaH6pxtuhKJgQyFgj4beKPhP7r26r-flF4b-T0SSQLASydmGcONLXJ1mh3-_DLmE/s1600/160921-childhood+brain+cancer+leading+death+of+kids.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrpV9ZJcx0u_17P5NMIJ4K-qxYaYxTLc6P4e7ozUEEIm1LBYR-Adn7OHqrys_P8p-WBmaaYdcv4ULiaH6pxtuhKJgQyFgj4beKPhP7r26r-flF4b-T0SSQLASydmGcONLXJ1mh3-_DLmE/s320/160921-childhood+brain+cancer+leading+death+of+kids.jpg" width="320" /></a></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 200%;">I
found this headline and the latest brain tumor news upsetting, horrifying and <span style="font-family: "arial" , "sans-serif";">painful</span>: "Brain Cancer Now Leading Childhood
Cancer Killer” - <a href="http://www.nytimes.com/aponline/2016/09/16/health/ap-us-med-childhood-cancer.html?_r=1">http://www.nytimes.com/aponline/2016/09/16/health/ap-us-med-childhood-cancer.html?_r=1</a>
</span></div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 200%;">I keep bumping into folks who have recently received bad
brain tumor news. Sometimes they find me and sometimes I reach out to them. </span></div>
<br />
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 200%;">Usually
they just want to tell their story – their symptoms, diagnosis, etc. – to somebody
who has an idea of what they are going through. It isn’t fun or easy or
rewarding, its hard and depressing. But I feel like I need to give them a
venue/listening ear/opportunity to talk to somebody who isn’t part of their
family and friends network.</span>
<br />
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<br /></div>
<div class="MsoNormal" style="line-height: 200%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 200%;">And
then I read this: “Brain Cancer is the Deadliest Childhood Cancer.” That means
some poor kid who hasn’t ever had a chance to have an adult life is going to
have the opportunity of a lifetime, literally, snatched away from them.
Thinking about it just makes me want to curl up into a little ball, roll into a
corner and cry.</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 200%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 200%;">Alternately,
I want to wail at the sky about the unfairness of it all. I imagine young
parents being whacked upside the head with the worst news imaginable. If I were
them, the pain would be unimaginable, unmanageable and unbearable; especially
given the fact that they’ll have to “be strong” for their child and deny their
own pain. </span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 200%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 200%;">As
the NY Times article points out, while that are more incidents of leukemia,
brain cancer accounts for more deaths because we (that’s all of us including
you and me) can’t figure out how to adequately fight this relentless nemesis.</span></div>
<div class="MsoNormal" style="line-height: 200%;">
<br /></div>
<div class="MsoNormal" style="line-height: 200%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 200%;">If
it sounds like I’m venting, I am. A close friend of ours is dying from GBM. All
the usual inadequate treatments have failed to help this courageous, wonderful
woman who grasped every joy out of life that she could. <span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoNormal" style="line-height: 200%;">
<br /></div>
<div class="MsoNormal" style="line-height: 200%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 200%;">I
want to close by saying that I believe that brain cancer has an insidious
aspect to it that other cancers do not. Brain cancer destroys a fundamental
element of who a person is. As brain function disintegrates, the person we knew
and loved transmogrifies into a ghost of the person we once knew. </span></div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 200%;">I
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 7.0pt; line-height: 200%;">Copyright:
<a href='http://www.123rf.com/profile_nuiiko'>nuiiko / 123RF Stock
Photo</a> </span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com21tag:blogger.com,1999:blog-8737952463754564753.post-11501991839915201742016-08-31T16:43:00.001-05:002016-08-31T16:43:17.879-05:00 Free Ependymoma Guide from the CERN Foundation<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYLJNF1ZOkqgTg_JPiStEdFKEqZCxliJg3gCUrbBf_o4413zPenlaS3AuziTGTtBJnAM2PoZ7gn_LHvQjXou8_TwP-fK39r-zEt1kkO-4h5Z9atZSysG48guVKLurpwZuIxpdOeEICkE0/s1600/160831-free+ependymoma+guide.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="193" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYLJNF1ZOkqgTg_JPiStEdFKEqZCxliJg3gCUrbBf_o4413zPenlaS3AuziTGTtBJnAM2PoZ7gn_LHvQjXou8_TwP-fK39r-zEt1kkO-4h5Z9atZSysG48guVKLurpwZuIxpdOeEICkE0/s320/160831-free+ependymoma+guide.jpg" width="320" /></a></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">I
hate Ependymoma. It's a vicious and unrelenting form of brain cancer that disproportionately
attacks very young children and young adults.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Since we have a great friend who's fighting a very, very tough battle with brain cancer right now, so for me the wonderful work that the CERN Foundation is doing feels a light in a very deep and dark tunnel of darkness. </span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Our
ability to Ependymoma isn’t great, although many scientists, including the
wonderful ones supported by the CERN Foundation are trying their best to find a
cure (more likely cures).</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">I thought you should know that I
just received an email telling me that the CERN Foundation has published a
second edition of their Ependymoma guide that you can get for free. Here’s the
blurb from that email:</span></div>
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<br /></div>
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you would like to order a FREE copy of the guide, send the following
information to administrator@cern-foundation.org: Your name, mailing address,
phone or e-mail. Indicate if you would like a pdf or mailed copy.”</span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com10tag:blogger.com,1999:blog-8737952463754564753.post-33603888173686495892016-08-26T11:50:00.000-05:002016-08-26T11:50:18.616-05:00“20 Must-Know Facts to Harness Neuroplasticity and Improve Brain Health”<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhiZMShRjT96R33KP5JBi_yFfp96J1xyTuNxfFa2VO3E26NRH4E1W9YveeC5W_Bhs5Znb9XIQ4A7yEeHzSEASXCRIuv2aGI6BYjyDAKeEDe_LDK790LHlNj6XIJEnq6_8FYbn4icGId2bE/s1600/160825-brain+health.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="226" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhiZMShRjT96R33KP5JBi_yFfp96J1xyTuNxfFa2VO3E26NRH4E1W9YveeC5W_Bhs5Znb9XIQ4A7yEeHzSEASXCRIuv2aGI6BYjyDAKeEDe_LDK790LHlNj6XIJEnq6_8FYbn4icGId2bE/s320/160825-brain+health.jpg" width="320" /></a></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">As
a brain tumor survivor, I am constantly on the lookout for ways to improve my
brain health. I am also a sucker for lists on how to improve myself. So I found
this list of “20 Must-Know Facts to Harness Neuroplasticity and Improve Brain
Health” written by Alvaro Fernandez, CEO of SharpBrains, helpful, insightful
and inspiring. Here’s a link: <a href="http://www.creativitypost.com/science/20_must_know_facts_to_harness_neuroplasticity_and_improve_brain_health">http://www.creativitypost.com/science/20_must_know_facts_to_harness_neuroplasticity_and_improve_brain_health</a>
</span></div>
<ol style="text-align: left;">
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">There
is more than one “It” in “Use It or Lose It” -- our performance depends on a
variety of brain functions and cognitive skills, not just one (be it
"attention" or "memory" or any other).</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>Genes do not determine the fate of our brains.
Thanks to lifelong neuroplasticity, our lifestyles are as important as our
genes--if not more-- in how our brains grow and our minds evolve.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>We need to pay more attention to Randomized
Controlled Trials (RCTs) to verify whether any intervention causes an effect,
and under what specific circumstances -- The media is doing quite a poor job,
in our view, to educate the general public.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>The largest recent RCT (the ongoing FINGER
study) and a 2010 systematic review of all relevant RCTs provide useful
guidance: First, they report a protective effect of social and cognitive
engagement, physical exercise, and the Mediterranean diet. Second, the average
benefits at the population level appear quite limited, so we need to have
realistic expectations.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>Physical exercise and increased fitness
promote brain functioning through a variety of mechanisms, including increased
brain volume, blood supply and growth hormone levels.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>Cardiovascular exercise that gets the heart
beating – from walking to skiing, tennis and basketball – seems to bring the
greatest brain benefits; thirty to sixty minutes per day, three days a week,
seems to be the best regimen.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>Mental stimulation strengthens the connections
between neurons (synapses), improving neuron survival and cognitive
functioning. Mental stimulation also helps build cognitive reserve, helping the
brain better cope with potential AD pathology.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>Routine activities do not challenge the brain.
Keeping up the challenge requires going to the next level of difficulty, or
trying something new.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>The only leisure activity that has been
associated with reduced cognitive function is watching television.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>Brain training can work, putting the
"cells that fire together wire together" to good use, but available
RCTs suggest some key conditions must be met to transfer to real-life benefits.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>The brain needs a lot of energy: It extracts
approximately 50% of the oxygen and 10% of the glucose from arterial blood.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>The Mediterranean Diet, supplemented with
olive oil and nuts, is associated with decreased risk of cognitive decline.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>Moderate doses of caffeine increase alertness
but there is no clear sustained lifetime health benefit (or harm).</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>Light-to-moderate alcohol consumption seems to
lower the risk of dementia.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>Taking "brain supplements" of any
kind does not seem to boost cognitive function or reduce risks of cognitive
decline or dementia, unless directed to address an identified deficiency.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>The larger and the more complex a person’s
social network is, the bigger the amygdala (which plays a major role in our
behavior and motivation). There is no clear evidence to date on whether
"online" relationships are fundamentally different from
"offline" ones in this regard.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>Chronic stress reduces and can even inhibit
neurogenesis. Memory and general mental flexibility are impaired by chronic
stress.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>There is increasing evidence that meditation
and biofeedback can successfully teach users to self-regulate physiological
stress responses.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>We will not have a Magic Pill or General
Solution to solve all our cognitive challenges any time soon, so a holistic
multi-pronged approach is recommended, centered around nutrition, stress
management, and both physical and mental exercise.</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="mso-spacerun: yes;"></span>Having said that, no size fits all, so it's
critical to understand and address individual needs, priorities and starting
points.</span>
</li>
</ol>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 4.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Copyright:
<a href='http://www.123rf.com/profile_mrspopman'>mrspopman / 123RF Stock
Photo</a></span></div>
<div class="MsoNormal" style="line-height: 150%;">
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com9tag:blogger.com,1999:blog-8737952463754564753.post-21716902742395353782016-08-01T15:49:00.002-05:002016-08-01T15:49:41.900-05:00Latest Brain Tumor Celebrity: Gord Downie<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLwiUor9MVlL-YgDlt8smJbp7mbLwam5nyo2jXwEYO-sJhlQ0L85ikly-dQYGFSMa1HeQW24pxDPpnHW9jXUzWFvnPMo8W2iV63OJITfpOVNiPe1XKAmc3OZDomWLTRJQugsiCSnTPfDs/s1600/160801-Gord+Downie.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLwiUor9MVlL-YgDlt8smJbp7mbLwam5nyo2jXwEYO-sJhlQ0L85ikly-dQYGFSMa1HeQW24pxDPpnHW9jXUzWFvnPMo8W2iV63OJITfpOVNiPe1XKAmc3OZDomWLTRJQugsiCSnTPfDs/s320/160801-Gord+Downie.jpg" width="320" /></a></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">I
often re-post articles about celebrities because:</span></div>
<ul style="text-align: left;">
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">I
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victims feel like they aren’t the only ones fighting this wicked disease.</span></li>
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<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">It
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">So Today
I ran across an article about Gord Downie from the Canadian Press who reports
that “Canadian rock band the Tragically Hip begins what is being billed as its
final tour after lead singer Gord Downie was diagnosed with a deadly brain
cancer.”</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">If you are a Gord Downie fan, you may want to read about Glioblastoma (GBM) which is the brain tumor disease the article reports that he has. :-(</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Here’s
a link: <a href="http://www.huffingtonpost.ca/2016/07/22/gord-downie-brain-cancer_n_11136234.html">http://www.huffingtonpost.ca/2016/07/22/gord-downie-brain-cancer_n_11136234.html</a>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com4tag:blogger.com,1999:blog-8737952463754564753.post-89168822717664667282016-07-18T10:58:00.000-05:002016-07-18T10:58:46.928-05:00“New Liquid Aspirin Found To Be Ten Times More Effective In Killing Cancer Cells Than Chemotherapy”<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEil-g3kVxExAHffWCbokSfv24jpIqElIAs7gtB6aGEKlbpoq8TBq9-HzAhXf3pgNbkEVVb2xah8fc5QeokKZDEJlT7UUfVReV8PQQ95SmxxDF7kt_sfJgujhbZ_oVVfsjP_nnWzW-yDJOM/s1600/160718-new+gbm+treatment+liquid+aspirin.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="270" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEil-g3kVxExAHffWCbokSfv24jpIqElIAs7gtB6aGEKlbpoq8TBq9-HzAhXf3pgNbkEVVb2xah8fc5QeokKZDEJlT7UUfVReV8PQQ95SmxxDF7kt_sfJgujhbZ_oVVfsjP_nnWzW-yDJOM/s320/160718-new+gbm+treatment+liquid+aspirin.jpg" width="320" /></a></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">This
headline in “Science World Report” my eyeballs and didn’t let go until I read
the very short article - <a href="http://www.scienceworldreport.com/articles/42985/20160630/new-liquid-aspirin-found-to-be-ten-times-more-effective-in-killing-cancer-cells-than-chemotherapy.htm">http://www.scienceworldreport.com/articles/42985/20160630/new-liquid-aspirin-found-to-be-ten-times-more-effective-in-killing-cancer-cells-than-chemotherapy.htm</a></span></div>
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</span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">I
then tracked down an article posted on MedicalNewsToday.com <a href="http://www.medicalnewstoday.com/articles/311306.php">http://www.medicalnewstoday.com/articles/311306.php</a>
- that gave more details. The article’s headline reported that “At a scientific
meeting this week, researchers hail their evidence about a new soluble drug
containing liquid aspirin as a potential breakthrough in the treatment of brain
tumors.”</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">In
this article, by Catharine Paddock PhD, reports that at the “Brain Tumours 2016
- From Biology to Therapy” meeting, held in Warsaw, Poland, 27-29 June, 2016
the news was announced. </span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">An
important part of the announcement was the claim that Prof. Geoff Pilkington
and Dr. Richard Hill have figured out how to cross the “blood-brain barrier.”</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Paddock
writes that, “Researchers trying to develop cancer drugs for treating brain
tumors have found it very difficult to create compounds that pass through the
blood-brain barrier. Many cancer drugs that can defeat tumors in other parts of
the body cannot pass through.”</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Apparently,
this new breakthrough enables cancer drugs to do just that.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Paddock
goes on to report that “They ( i.e. Prof. Geoff Pilkington and Dr. Richard Hill)
say their findings suggest the new drug could be highly effective against
glioblastoma, one of the most devastating and most common type of brain tumor
in adults say their findings suggest the new drug could be highly effective
against glioblastoma, one of the most devastating and most common type of brain
tumor in adults.</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">I
suggest you read the entire article.</span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com7tag:blogger.com,1999:blog-8737952463754564753.post-84608451169371635402016-07-11T17:10:00.000-05:002016-07-11T17:11:22.439-05:00“Useless treatments common in young, terminal cancer patients”<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFaZ2TS5cavFR2jgDULBiVtz_SZuTYLI27SzUjW22t8dHeTCODPA-e-8XYjqVrQzvl5NnT_FB9Kn1iW_Wa8EzX1bWPxsAbkY82IVHG0xApGU2CzA0rT2i_eXWyZT96FXn7s9dUHLUXU5w/s1600/160711-end+of+life+care.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="197" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFaZ2TS5cavFR2jgDULBiVtz_SZuTYLI27SzUjW22t8dHeTCODPA-e-8XYjqVrQzvl5NnT_FB9Kn1iW_Wa8EzX1bWPxsAbkY82IVHG0xApGU2CzA0rT2i_eXWyZT96FXn7s9dUHLUXU5w/s320/160711-end+of+life+care.jpg" width="320" /></a></div>
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<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">That’s
the headline of a story I’ve just reread that was written by Dennis Thompson of
HealthDay - <span style="mso-spacerun: yes;"> </span><a href="http://www.chicagotribune.com/lifestyles/health/sc-useless-cancer-treatments-terminal-health-0622-20160607-story.html">http://www.chicagotribune.com/lifestyles/health/sc-useless-cancer-treatments-terminal-health-0622-20160607-story.html</a></span></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">
</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">This
news makes me wince uncomfortably. </span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Thompson
reports that “An analysis of insurance records found that cancer patients often
undergo chemotherapy, radiation therapy or surgery in their final 30 days.”</span><br />
</div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">I’m
trying to better understand this and having trouble. Does this mean that
concerned doctors are trying to save patients right up to the last second? Or
does it mean that doctors are giving patients medicine that cannot help them,
but makes $$$ for ______ (I’ll let you fill in the blink).</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Thompson
further reports that “In 2012, ASCO issued a set of guidelines for physicians
that recommended against using aggressive measures in patients with advanced
cancer who are unlikely to benefit from such treatment. Instead, doctors should
focus on easing the patient's pain and symptoms, the guidelines say.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">He
also quotes Dr. Andrew Epstein, an ASCO expert in palliative care, saying,
"Much more often than not, these types of care at the end of life are not
helpful, and they are emotionally and physically harmful for patients, and
emotionally harmful to the patients' loved ones." Epstein is a medical
oncologist at Memorial Sloan Kettering Cancer Center in New York.”</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">To
see if these guidelines are being followed, researcher Dr. Ronald Chen - <span style="mso-spacerun: yes;"> </span>associate professor of radiation oncology at
the University of North Carolina at Chapel Hill - and his colleagues reviewed
claims data for more than 28,000 terminally ill cancer patients younger than 65
who died between 2007 and 2014. The patients lived across 14 different states
and had been diagnosed with advanced lung, colon, breast, pancreatic or
prostate cancer.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Guess
what?</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">The
investigators found that between 71 percent and 76 percent of patients received
some form of aggressive care at the end of life, depending on their type of
cancer. </span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Somehow
this just makes me sad. Not only are these victims dying, it <i style="mso-bidi-font-style: normal;">seems</i> like they aren’t allowed to go
peacefully.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">I
could be wrong. Maybe all of these victims want to fight to their last breadth
no matter what the odds are. </span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Read
the article and decide for yourself.</span></div>
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<br /></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com2tag:blogger.com,1999:blog-8737952463754564753.post-21243260973235457072016-06-28T10:28:00.002-05:002016-06-28T10:30:30.850-05:00Crossing the blood-brain barrier to better combat brain cancer<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0VASzHD15SV662MmrOMSBZVZuwy-wwqOtZBsYicKUmmTyGj8uwpxq6u2J5dbCFMx9dhh34tcHS1D3xFpix57nda65XqLtWn0FwxRISDWjNu7fOavwsC-_KKqr0Tj8sWgeKdF-20ufwSo/s1600/160628-blood+brain+barrier.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="223" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0VASzHD15SV662MmrOMSBZVZuwy-wwqOtZBsYicKUmmTyGj8uwpxq6u2J5dbCFMx9dhh34tcHS1D3xFpix57nda65XqLtWn0FwxRISDWjNu7fOavwsC-_KKqr0Tj8sWgeKdF-20ufwSo/s320/160628-blood+brain+barrier.jpg" width="320" /></a></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Here’s
some potentially good news from Ryan Cross who wrote about Alexandre
Carpentier (pictured above), a neurosurgeon at the Pitié-Salpêtrière Hospital in Paris, who used
“ultrasound to open the blood-brain barrier in patients with recurrent
glioblastoma, the most common and deadly tumor originating in the adult
brain—allowing for delivery of chemotherapy that would otherwise reach the
tumor in minuscule amounts” - <a href="https://www.technologyreview.com/s/601691/ultrasound-opens-the-brain-to-promising-drugs/">https://www.technologyreview.com/s/601691/ultrasound-opens-the-brain-to-promising-drugs/</a></span></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">As
background, you should know that the protective sheath surrounding the brain’s
blood supply—known as the blood-brain barrier—is a safeguard against nasty
germs and toxins.<span style="font-family: "arial" , "sans-serif";"> </span>But it also prevents existing drugs that could potentially be
used to treat brain cancer or Alzheimer’s disease from reaching the brain. </span></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">According
to Cross, “the procedure works by first injecting microbubbles into the
bloodstream and then using a device implanted near patients’ tumors to send
ultrasonic soundwaves into the brain, exciting the bubbles. The physical
pressure of the bubbles pushing on the cells temporarily opens the blood-brain
barrier, letting an injected drug cross into the brain.”</span></div>
<br />
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 115%;">Here’s a link to the abstract: <a href="http://stm.sciencemag.org/content/8/343/343re2">http://stm.sciencemag.org/content/8/343/343re2</a>
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<span style="font-family: "arial" , "helvetica" , sans-serif;"><span style="font-size: small;">Picture: Alexandre Carpentier holds the SonoCloud device, which he has implanted in 15 brain cancer patients.</span></span></div>
John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com2tag:blogger.com,1999:blog-8737952463754564753.post-22256391283596097202016-06-21T14:17:00.000-05:002016-06-21T14:20:40.785-05:00New Research Study: benign brain tumors less likely with high blood sugar<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">I’ve always thought that
obesity and diabetes were risk factors for meningioma. </span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">But the results of a
research study in <i style="mso-bidi-font-style: normal;">The British Journal of
Cancer </i>reports findings that contradict that belief and previous studies. Here’s
a link to the abstract:<span style="mso-spacerun: yes;"> </span><a href="http://www.nature.com/bjc/journal/vaop/ncurrent/full/bjc2016157a.html">http://www.nature.com/bjc/journal/vaop/ncurrent/full/bjc2016157a.html</a>
</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<i style="mso-bidi-font-style: normal;"><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Science
Daily<span style="mso-spacerun: yes;"> </span></span></i><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">highlighted this contradiction
writing “<span style="background: white; color: #333333;">In a surprising twist,
benign brain tumors that have previously been tied to obesity and diabetes are
less likely to emerge in those with high blood sugar, new research has found.</span>” </span><br />
<i style="mso-bidi-font-style: normal;"><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">- <a href="https://www.sciencedaily.com/releases/2016/06/160620100649.htm">https://www.sciencedaily.com/releases/2016/06/160620100649.htm</a> </span></i></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">The <i style="mso-bidi-font-style: normal;">Science Daily</i> article provided context noting that “… <span style="background: white; color: #333333;">previous research had established that the slow-growing
tumors are more common among people who are obese and those who have diabetes,
researchers led by The Ohio State University's Judith Schwartzbaum set out to
look for a relationship between meningiomas and blood markers, including
glucose.</span>”</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="background: white; color: #333333; font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">This relationship made sense to me as a non-scientist and a meningioma
survivor: if I lead an unhealthy lifestyle, I could get whacked with a brain
tumor. The unexpected finding seems to have also confused Schwartzbaum who said:
"It's so unexpected. Usually diabetes and high blood sugar raises the risk
of cancer, and it's the opposite here." </span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="background: white; color: #333333; font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">And she should know, Schwartzbaum is an associate professor of epidemiology
and a researcher in Ohio State's Comprehensive Cancer Center.<span class="apple-converted-space"> </span></span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">This confusion or unexpected
result has dampened<span style="background: white; color: #333333;"> my sense of
control, or at least my hope that I can improve my odds of avoiding a
meningioma reoccurrence by doing what I thought made sense – staying thin. Now
another weapon/practice/solution has been deleted from my arsenal.</span></span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="background: white; color: #333333; font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Arrggghhh!</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 6.0pt; line-height: 150%;">Copyright:
<a href='http://www.123rf.com/profile_kwanchaichaiudom'>kwanchaichaiudom
/ 123RF Stock Photo</a></span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com1tag:blogger.com,1999:blog-8737952463754564753.post-27025375976468225972016-06-06T17:19:00.000-05:002016-06-07T13:03:53.894-05:00A great conference for patients, caregivers, friends & family members<div dir="ltr" style="text-align: left;" trbidi="on">
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<br />
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">I
highly recommend this conference. </span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">You
will find great brain tumor surgeons, researchers, victims, caregivers, and
friends and family members. I’ve found everybody who attends to be good
listeners and full of honest advice and time to listen to you and your concerns.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Here’s
the link: <a href="http://hope.abta.org/site/TR?fr_id=3521&pg=entry">http://hope.abta.org/site/TR?fr_id=3521&pg=entry</a>
</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">The
opening sentence of the email from the ABTA about the conference says “The
ABTA’s annual Patient and Family Conference is where patients, families and
caregivers come together to learn more about the latest advances in brain tumor
research, treatment and care.” I want to highlight two important words “<b>latest
advances</b>.” </span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">If
you haven’t been reading all the brain tumor news that’s been spilling out of
research studies of late, here’s a good place to get a sense of all the new
tools we have to fight brain tumors. The ABTA marketing folks have highlighted
that in their first two bullet points saying:</span></div>
<br />
<ul style="text-align: left;">
<li><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">“Physicians
will present the latest precision medicine treatment options and symptom
management techniques for low-grade glioma, high-grade glioma and metastatic
brain tumors</span></li>
</ul>
<br />
<ul style="text-align: left;">
<li><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Researchers
and doctors will highlight treatment advances in neurosurgery, radiation and
immunotherapy”</span></li>
</ul>
<br />
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Importantly
the conference includes “A special session for the newly diagnosed will cover
how to navigate the early days of a brain tumor diagnosis and what information
patients, families and caregivers would need to know in order to be empowered
with information and resources to make informed decisions throughout their
treatment and care.”</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Please
know that the conference costs $100. If you are a victim, caregiver or love
one, I believe that you will find this to be a particularly good investment.</span></div>
</div>
John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com2tag:blogger.com,1999:blog-8737952463754564753.post-83269334783762976072016-05-31T16:51:00.004-05:002016-05-31T16:51:51.084-05:00“Living Each Day to the Fullest” – diagnosed with Ependymoma at age 4<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjAwu8_PVNTjq-oHwIQoB-MLfkBWwz-FESy4G41F_cVDrtvisMFf-coHFZezfXKwyxIPDAxKD6LAOsnK-TD1GnHQbGmlky_3K382AHW8mVnLAuTGe2J1pDGroDVGOAnbOW4jF0IMDNb1Pg/s1600/160531-childhood+cancer.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjAwu8_PVNTjq-oHwIQoB-MLfkBWwz-FESy4G41F_cVDrtvisMFf-coHFZezfXKwyxIPDAxKD6LAOsnK-TD1GnHQbGmlky_3K382AHW8mVnLAuTGe2J1pDGroDVGOAnbOW4jF0IMDNb1Pg/s320/160531-childhood+cancer.jpg" width="320" /></a></div>
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</xml><![endif]--><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">I heard some good advice
from a guy whose wife’s best friend was diagnosed with glioblastoma, Grade 4,
it was something like “enjoy every day.” </span>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">I had a hard time with that
advice for a while – how could they enjoy life knowing that she had
this horrible disease eating away at her, inexorably dragging her into the grave? </span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">I now think differently
about this advice. I don’t believe the advice is trite or Pollyanna-ish or
divorced from reality. I think its sound advice that reminds us all to cherish
what health and family we have while they are with us. </span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">I know of no other story
that tugs on my emotional heart strings as hard as stories about children with cancer,
like many of the Ependymoma stories you’ll find on the CERN website. </span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">I’ve attached a link to one such story that </span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;"><!--[if gte mso 9]><xml>
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</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;"></span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;"></span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">brings this idea to life - a story about little four-year-old “Sophia L.” with Intramedullary
Ependymoma. You can read about her and her mother here:<span class="apple-converted-space"><b><i><span style="background: white; border: none windowtext 1.0pt; color: #444444; mso-border-alt: none windowtext 0in; padding: 0in;"> <a href="https://cern-foundation.org/?page_id=6411">https://cern-foundation.org/?page_id=6411</a>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com1tag:blogger.com,1999:blog-8737952463754564753.post-27722927790907353582016-05-26T11:18:00.000-05:002016-05-26T11:21:42.537-05:00Latest GBM Insight: Immune Genes Identified that Affect How Long Victims May Live<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwwiqkjqMQgVhEH4O-LhT447K60qDZ6Q-XHajo66ql99HIpN2dMfd9rK5ksEjZVmD9ErBAvGiDXBuwUW3w7PFufj8UzDYql16xGRJTBKPenkt4IQB_FRTa1Jx5Sbc9frYehoGTSqSrHFQ/s1600/160526-brain+tumor+gene.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="256" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwwiqkjqMQgVhEH4O-LhT447K60qDZ6Q-XHajo66ql99HIpN2dMfd9rK5ksEjZVmD9ErBAvGiDXBuwUW3w7PFufj8UzDYql16xGRJTBKPenkt4IQB_FRTa1Jx5Sbc9frYehoGTSqSrHFQ/s320/160526-brain+tumor+gene.jpg" width="320" /></a></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">The lead sentence from an
article written by Robert Preidt says it best “Researchers have identified
immune genes that may affect how long people live after diagnosis with a common
type of brain cancer.” See <a href="https://www.nlm.nih.gov/medlineplus/news/fullstory_159031.html">https://www.nlm.nih.gov/medlineplus/news/fullstory_159031.html</a>
</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">He goes on to quote study
auther study author Dr. Anhua Wu, of First Hospital of China Medical University
in Shenyang, China<span style="mso-spacerun: yes;"> </span>who said "We've
had luck with other types of cancer in removing the brakes on the immune system
to allow it to fight the tumors, but this has not been the case with
glioblastoma".</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">My scatological reaction is “no
shit.”</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Yet, it’s an important step
that no one else has taken. </span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Preidt
goes on to note that “If confirmed in other studies, the researchers say their
findings could lead to improved treatment in the future.”<br />
<br />
Here’s another important insight from Preidt’s article that, one hopes,
identifies a tipping point: “Dr. Rifaat Bashir, a retired neurologist in
Reston, Va., wrote an editorial accompanying the study. ‘The looming question
in brain cancer research today is whether the launch of immunotherapy will help
control an uncontrollable disease,’ Bashir said in the journal news release.”<br />
<br />
"While this study does not answer this question, it brings us one step
closer to believing that one day we will be able to exploit the immune system
to better treat glioblastoma," Bashir noted.<br />
<br />
The report was published online May 25 in the journal Neurology - <a href="http://www.neurology.org/content/early/2016/05/25/WNL.0000000000002770.short?sid=9afcf6d4-b9f2-4f7f-b9dc-2dcf638cb84d">http://www.neurology.org/content/early/2016/05/25/WNL.0000000000002770.short?sid=9afcf6d4-b9f2-4f7f-b9dc-2dcf638cb84d</a>
<br />
<br />
<br />
</span><span style="font-family: "Arial","sans-serif"; font-size: 10.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">PS - According to the stock photo site
from which I purchased this 3D animation the keywords describing this visual
include brain, cancer, cancer cell, dead body, illness, and somewhat surprising
to me ""beauty and health" </span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"></span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com1tag:blogger.com,1999:blog-8737952463754564753.post-84475249287063632262016-05-19T15:04:00.000-05:002016-05-19T15:06:36.846-05:00Killing GBM with Polio: 60 Minutes Episode Labeled “Breakthrough Status”<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNb7HydxX6PIEOhN-Aouz68LEYd5WaUEQGtlDDamdo686KgMGkaj5iyn66s45Ha3UIpmPdmO-q2Pd14Aq_MSOznRqU1mqSIgZeazPAJVS0x0GOVEuWBwLvBVeZMKczd5LsuHnDdMZUxNY/s1600/160519-breakthrough+status.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="234" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNb7HydxX6PIEOhN-Aouz68LEYd5WaUEQGtlDDamdo686KgMGkaj5iyn66s45Ha3UIpmPdmO-q2Pd14Aq_MSOznRqU1mqSIgZeazPAJVS0x0GOVEuWBwLvBVeZMKczd5LsuHnDdMZUxNY/s320/160519-breakthrough+status.jpg" width="320" /></a></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">All
you brain tumor victims, caregivers and victim friends and relatives should
know that:</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%; text-align: left;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">“On May 15, CBS 60 Minutes reported that a polio virus vaccine
received breakthrough status from the U.S. Food and Drug Administration because
of promising results in early studies conducted at Duke University. In an
almost 40-minute newscast, CBS 60 Minutes shares perspectives from the
researchers, and stories from patients and caregivers that highlighted their
experience on the trial.”</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">“Breakthrough
Status” is not lightly given by the U.S. Food and Drug Administration. To the
best of my knowledge, this is unprecedented for a brain tumor therapy.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">If
you have a loved one suffering from Glioblastoma, watch this episode<span style="font-family: "arial" , "sans-serif";">: <a href="http://www.cbsnews.com/news/60-minutes-fda-breakthrough-status-duke-university-cancer-therapy/">http://www.cbsnews.com/news/60-minutes-fda-breakthrough-status-duke-university-cancer-therapy/ </a></span></span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">This
is the second time I’m writing about this therapy.<span style="mso-spacerun: yes;"> </span>I am compelled to write about it because a
dear college friend of my wife and mine has just been diagnosed with GBM. GBM
is a horrific, relentless, terrifying disease that strikes down wonderful
people, fabulous people, important people indiscriminately and ruthlessly.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Historically,
GBM victims have had almost no hope at all. Now, for the first time, there
seems to be a path available to some victims. <a href="http://www.cbsnews.com/news/60-minutes-fda-breakthrough-status-duke-university-cancer-therapy/"></a>
</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">I
cannot write anymore today, because if I do, I will start weeping and screaming
and thrashing about like somebody or something is tearing my soul in two.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">John</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">PS
– In addition to providing a link to the episode, the segment’s script is also
posted.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">PPS
– On this 60 Minute segment Scott Pelley is the correspondent. Denise Schrier
Cetta and Michael Radutzky, are producers.</span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com1tag:blogger.com,1999:blog-8737952463754564753.post-3550397362139177562016-05-12T14:29:00.000-05:002016-05-12T14:29:45.301-05:00Novocure Announces GBMCommunity.com<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">I was recently contacted by
Jacqueline Hong of the Chandler Chicco Agency who sent me a copy of a May 5<sup>th</sup>
press release saying “Novocure™ (NASDAQ: NVCR) announced today the availability
of a new online resource to raise awareness of glioblastoma (GBM) and share
stories of inspiration with the GBM community. An interactive exhibit featuring
patients, caregivers, doctors, nurses and advocates will also be displayed
within the coming months.”</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="background: white; line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">You
should know that I am conflicted about what I should do in these situations.
Part of me understands that I am being contacted because, in addition to being
the good guys that have developed this online resource, they are an oncology
company who has products to sell.<span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoNormal" style="background: white; line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;"><span style="mso-spacerun: yes;"> </span></span></div>
<div class="MsoNormal" style="background: white; line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">At
the same time, it’s a nicely informative community-building website - <a href="http://www.gbmcommunity.com/">www.gbmcommunity.com</a> – which may help
some poor brain tumor victim who is desperate for information and brain tumor
community support.</span></div>
<div class="MsoNormal" style="background: white; line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="background: white; line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">With
that being said, the press release also says “T</span><span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-fareast-font-family: "Times New Roman";">he website, <a href="http://www.gbmcommunity.com/" target="_blank"><span style="color: #1155cc;">GBMcommunity.com</span></a>,
features a mosaic of videos and images from the GBM community offering messages
of hope and inspiration. The website also provides an overview of GBM and links
to resources and advocacy groups.”</span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;"></span></div>
<div class="MsoNormal" style="background: white; line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="background: white; line-height: 150%;">
<span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-fareast-font-family: "Times New Roman";">I was pleased to read that, “Novocure actively engaged members of the community to determine
the resources they felt they needed most,” said Pritesh Shah, Senior Vice
President, Americas. “This new website and exhibit were born from the GBM
community and created with assets provided by the community.”</span></div>
<div class="MsoNormal" style="background: white; line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="background: white; line-height: 150%;">
<span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-fareast-font-family: "Times New Roman";">Let me know if you do or don't like reading about this kind of information in my blog.</span></div>
<div class="MsoNormal" style="background: white; line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="background: white; line-height: 150%;">
<span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-fareast-font-family: "Times New Roman";">John </span></div>
</div>
John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com1tag:blogger.com,1999:blog-8737952463754564753.post-2337263756291282092016-05-03T12:30:00.000-05:002016-05-03T12:30:35.912-05:00Canadian (Brain) Cancer Survivor Network<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">If
you are a brain tumor victim or caretaker or friend or family member, I would
advise you to read blogs and books written by other victims, caretakers,
friends and family members. </span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">When
I did, I learned that</span></div>
<br />
<ul style="text-align: left;">
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">I’m
not the only one struggling with _______ (pick your tumor)</span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Others
know how devastating the emotional hurdles are, let alone the chemo and
radiation</span></li>
<li><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Other
people have had these problems and survived</span></li>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">You
can find a great listing of brain cancer stories on the Canadian Cancer<span style="mso-spacerun: yes;"> </span>Survivor Network: <a href="http://survivornet.ca/en/groups/blogs/brain_cancer_2">http://survivornet.ca/en/groups/blogs/brain_cancer_2</a>
</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">John</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">PS
– Importantly, they all ain’t happy stories with Hollywood endings.</span></div>
</div>
John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com2tag:blogger.com,1999:blog-8737952463754564753.post-66500771184609411912016-05-01T14:10:00.000-05:002016-05-01T14:16:15.505-05:002016 Ependymoma Awareness Day<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="background: white; color: #444444; font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1Pylaf5McUwnnZbWXc506XCw-Hbn9jkCNGbOOVD-hpLBbqfmgBOOIXGzXyfMHFLQ-TFxBOAlZ5ADQC1T6g3RBX356i2NQAulRH84LxPFPIzPMXopVrTH3sXdiXFgAjCvx1ghtQaAQTyo/s1600/160501-butterfly+for+Ependymoma+day.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1Pylaf5McUwnnZbWXc506XCw-Hbn9jkCNGbOOVD-hpLBbqfmgBOOIXGzXyfMHFLQ-TFxBOAlZ5ADQC1T6g3RBX356i2NQAulRH84LxPFPIzPMXopVrTH3sXdiXFgAjCvx1ghtQaAQTyo/s320/160501-butterfly+for+Ependymoma+day.jpg" width="320" /></a></span></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">The
CERN Foundation will commemorate Ependymoma Awareness Day with a mass butterfly
release that will take place on May 2 during the 2016 Head to the Hill
activities.<span style="mso-spacerun: yes;"> </span>The butterfly release will
be video-taped and posted on the internet so that supporters unable to attend
Head to the Hill can participate and share in this moving occasion. </span></div>
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<br /></div>
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is a fund-raiser. The $ from every butterfly bought aids the Cern Foundation -
a wonderful nonprofit dedicated to eradicating this horrible disease.</span></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Not
interested? Before you click away, please watch this Youtube video:
<a href="https://www.youtube.com/watch?v=57B50Zu2qwA">https://www.youtube.com/watch?v=57B50Zu2qwA</a></span></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 6.0pt; line-height: 150%;">Copyright:
<a href='http://www.123rf.com/profile_mrthreeson'>mrthreeson / 123RF
Stock Photo</a></span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com0tag:blogger.com,1999:blog-8737952463754564753.post-49260463524366813842016-04-26T14:47:00.001-05:002016-04-27T09:26:40.012-05:00Researchers find potential new treatment target for deadly brain cancer<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7pqN08k606yS6YLGrnWiP57xP5DF7JUgQCwM3N8oBY7ZM50u6SSBE57ikwHKrrJ7b7fBBqHyTvQdnoXDE6a1T8to3ff8dItHAupUb144I5-6cJk-ZaH5BbNyAm3lDTmodkACUtGXm87E/s1600/160426-brain+tumor+news+latest+possibility.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="228" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7pqN08k606yS6YLGrnWiP57xP5DF7JUgQCwM3N8oBY7ZM50u6SSBE57ikwHKrrJ7b7fBBqHyTvQdnoXDE6a1T8to3ff8dItHAupUb144I5-6cJk-ZaH5BbNyAm3lDTmodkACUtGXm87E/s320/160426-brain+tumor+news+latest+possibility.jpg" width="320" /></a></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">That’s the title of an
abstract from the </span><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Ottawa Hospital Research Institute. The
summary says “A key player in brain tumor formation has been found that may
lead to new therapies for a deadly and incurable cancer. The study is the first
to show that a protein called OSMR (Oncostatin M Receptor) is required for
glioblastoma tumours to form. Glioblastoma is one of the most deadly cancers,
resistant to radiation, chemotherapy and difficult to remove with surgery.”</span></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">I don’t have anything to add to
the quotes from the lead author, which I’ve cut and pasted in the following:</span></div>
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<div class="MsoNormal" style="line-height: 150%; mso-margin-bottom-alt: auto; mso-margin-top-alt: auto; mso-outline-level: 1;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">"The fact that most patients with
these brain tumours live only 16 months is just heartbreaking," said Dr.
Arezu Jahani-Asl, the lead author who performed this research largely in Ottawa
while she was a postdoctoral fellow co supervised by Dr. Michael Rudnicki at
The Ottawa Hospital and the University of Ottawa and by Dr. Azad Bonni from
Harvard Medical School and Washington University School of Medicine.
"Right now there is no effective treatment, and that's what drives me to
study this disease." Dr. Jahani-Asl is now an assistant professor in the
Department of Oncology at McGill University and a principal investigator at the
Jewish General Hospital, with a laboratory dedicated to how glioblastoma
develops.</span></div>
<div class="MsoNormal" style="line-height: 150%; mso-margin-bottom-alt: auto; mso-margin-top-alt: auto; mso-outline-level: 1;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%; mso-margin-bottom-alt: auto; mso-margin-top-alt: auto; mso-outline-level: 1;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Here’s a link to the article: <a href="https://www.sciencedaily.com/releases/2016/04/160425141536.htm">https://www.sciencedaily.com/releases/2016/04/160425141536.htm</a></span></div>
<div class="MsoNormal" style="line-height: 150%; mso-margin-bottom-alt: auto; mso-margin-top-alt: auto; mso-outline-level: 1;">
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">PS - Please excuse the the morbid black and white graphic, but I'm feeling awfully sad about this GBM and the near term options for victims which, at this moment, still seem to be slim and none.
</span></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 6.0pt; line-height: 150%;">Copyright: <a
href='http://www.123rf.com/profile_lightwise'>lightwise / 123RF Stock
Photo</a></span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com2tag:blogger.com,1999:blog-8737952463754564753.post-7597190475885946132016-04-22T12:30:00.001-05:002016-04-22T12:30:52.000-05:00Chief Complaint, Brain Tumor<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">I
once had somebody smart tell me that a good way to sort deal with a difficult
situation is to get it out of your head by writing it down.</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">And
while I couldn’t get my brain tumor out of my head by writing it down, I found
that writing about my tumor (meningioma) helped me deal with it. </span></div>
<div class="MsoNormal" style="line-height: 150%; margin-bottom: .0001pt; margin-bottom: 0in; mso-margin-top-alt: auto;">
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<div class="MsoNormal" style="line-height: 150%; margin-bottom: .0001pt; margin-bottom: 0in; mso-margin-top-alt: auto;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">I generally tell
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while there is nothing funny about having a brain tumor, like Roberto Benigni’s
movie, <i>Life is Beautiful</i>, this book explains how I used humor to
remain sane when faced with the insanity of a brain tumor the size of my wife’s
fist.</span><span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; line-height: 150%; mso-fareast-font-family: "Times New Roman";"></span></div>
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<span style="color: black; font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-fareast-font-family: "Times New Roman";">The story loosely chronicles the first year I spent addressing
tumor-related health issues: preparing for the (first) operation, having a
skull infection, having the infected portion of my skull removed, undergoing
rehab and radiation treatment, and learning to live with my “new normal” (the
words “new normal” are the medical community’s code words for “you’re alive so
quit complaining”).</span><span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; line-height: 150%; mso-fareast-font-family: "Times New Roman";"></span></div>
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<span style="color: black; font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-fareast-font-family: "Times New Roman";">More important than the details of my health woes, however,
were my emotional reactions to those events. As my health changed, so did
my sense of humor. It started out superficially light-hearted prior to the
first operation; transmogrified into gallows humor after several operations;
and leveled out as somewhat wry-ish after radiation and significant rehab. You
will see this in my often embarrassing interactions with friends,
family and medical professionals of all shapes and sizes.</span><span style="font-family: "Times New Roman","serif"; font-size: 12.0pt; line-height: 150%; mso-fareast-font-family: "Times New Roman";"></span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Should
you for some strange reason want to know more or (gasp!) buy it, here’s some
links:</span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><a href="http://www.chief-complaint.com/">http://www.chief-complaint.com/</a></span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"> </span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><a href="http://www.amazon.com/Chief-Complaint-Brain-John-Kerastas/dp/0865349088/ref=sr_1_1?s=books&ie=UTF8&qid=1351092114&sr=1-1&keywords=kerastas">http://www.amazon.com/Chief-Complaint-Brain-John-Kerastas/dp/0865349088/ref=sr_1_1?s=books&ie=UTF8&qid=1351092114&sr=1-1&keywords=kerastas</a>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com2tag:blogger.com,1999:blog-8737952463754564753.post-84820134565230295172016-04-12T10:19:00.000-05:002016-04-18T09:52:34.656-05:00Buy a Butterfly, Help a Kid: 2016 Ependymoma Day<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb8KecilMdBQrp4jZGRTK694DpsQH14KaI0soOZ-yk1oOQe1WxOMx5GlIVOY16HZLAJndVQVm4cnYAN2CSQsxSmlE8KLFNvHum38ind-Xu_SvLSbeiu4QCekWouSwl5Tlb2CbQ1wRtAQ0/s1600/160412-ependymoma.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb8KecilMdBQrp4jZGRTK694DpsQH14KaI0soOZ-yk1oOQe1WxOMx5GlIVOY16HZLAJndVQVm4cnYAN2CSQsxSmlE8KLFNvHum38ind-Xu_SvLSbeiu4QCekWouSwl5Tlb2CbQ1wRtAQ0/s400/160412-ependymoma.jpg" width="400" /></a></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Of
all the bad cancers out there, Ependymoma is one that I really detest.</span></div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">A</span><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">ccording
to the CERN website - <a href="http://cern-foundation.org/">http://cern-foundation.org/</a>
- “An ependymoma is a rare type of primary brain or spinal cord tumor. It
occurs in both adults and children. Primary tumors are those that start either
the brain or spine. The brain and spine are part of the central nervous system
(CNS).</span>
</div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Ependymomas
make up about 5% of adult intracranial gliomas and up to 10% of childhood
tumors of the central nervous system (CNS). Their occurrence seems to peak at
age 5 years and then again at age 35.”</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">So
here’s a crappy cancer that whacks folks in early childhood or, quite possibly, right after
they’ve started a career/family.</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Ugh.</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">You
(yes, you!) can help. You can buy a butterfly as part of their innovative
fund-raising campaign. At $25/butterfly it just may be the best investment you
can make this year. With your powerful $25 butterfly you will help support
basic research, promote Ependymoma awareness and, when you watch the mass
butterfly release, have a big grin on your face knowing that you did something
to help victims of this terrible disease.</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Here’s
the link to buy your butterfly: <a href="https://secure.acceptiva.com/?cst=f10f74">https://secure.acceptiva.com/?cst=f10f74</a>
</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">And,
as always, I hope my butterfly will be a blue morph.</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">John</span></div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">PS - Yes this is not the most prevalent brain cancer, but it's one that, reading the stories of affected children and their parents, is most likely to make me weepy. </span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com0tag:blogger.com,1999:blog-8737952463754564753.post-18851097269000817782016-04-07T15:34:00.001-05:002016-04-07T15:35:14.012-05:00Beautiful Bad-Ass Brain Tumor Blogger Kaylin Andres & “Chaos in Humanhattan”<div dir="ltr" style="text-align: left;" trbidi="on">
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<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNY8alQEFf04K0Ze2qB-SJNTMAZwT48jQxXowvDd2UOijiTpyVho8NUq1fJ1g0Y7gw0jc6ZF0sPy5-0fSJfveRfAJHd_5i2cRLvgKke4q7wKj6H6Oj5soO2Pt1mxrRlIKTHK1D1qed_DY/s1600/Terminally+Illin+cover.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="311" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNY8alQEFf04K0Ze2qB-SJNTMAZwT48jQxXowvDd2UOijiTpyVho8NUq1fJ1g0Y7gw0jc6ZF0sPy5-0fSJfveRfAJHd_5i2cRLvgKke4q7wKj6H6Oj5soO2Pt1mxrRlIKTHK1D1qed_DY/s320/Terminally+Illin+cover.jpg" width="320" /></a></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="color: blue;"><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">I
see a lot of folks reading my February 2013 post entitled “Beautiful Bad-Ass
Brain Tumor Bloggers: Kaylin Andres Spotlight” - <a href="http://johnstumor.blogspot.com/2013/02/beautiful-bad-ass-brain-tumor-bloggers.html">http://johnstumor.blogspot.com/2013/02/beautiful-bad-ass-brain-tumor-bloggers.html</a></span></span></div>
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<span style="color: blue;"><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">
</span></span></div>
<span style="color: blue;">
</span><br />
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<span style="color: blue;"><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">That’s
great. But if you’ve only read that post, you’re missing the rest of the story.</span></span></div>
<span style="color: blue;">
</span><br />
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="color: blue;"><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">The
rest of the story is detailed in my post about the graphic novel that Kaylin,
Jon Solo and Jade Takashi created entitled “Chaos in Humanhattan.” It’s more
important because it shows how she and her collaborators have surged beyond
that horrific experience to give back to the brain tumor community, especially to
millennials whacked by brain tumors.<span style="mso-spacerun: yes;"> </span></span></span></div>
<span style="color: blue;">
</span><br />
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="color: blue;"><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">So
here’s what I previously wrote about “Chaos in Humanhattan.”</span></span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">REPRINTED
FROM MARCH 10, 2015</span></div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">“Today
I got a real treat, my own personal copy of Chaos in Humanhattan - the scary,
cynical, irreverent, twenty-something, mash-up of a memoir, a ”chemo-induced
‘Alice in Wonderland’ story and a “campy ‘Hollywood’ action adventure” graphic
novel that focuses on the Kaylin Andres and her Ewing Sarcoma cancer battles.
<a href="http://www.cancercomicbook.com/">http://www.cancercomicbook.com/</a></span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">While
the story is fantastical, so is the fact that Kaylin is still alive. I believe
she’s still living because she found humor – black humor, gallows humor,
sardonic humor – an vehicle for empowering her fight with a dark, hideously
unrelenting cancer that whacked her at twenty-three and kept trying to drag her
into the grave.</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">“Chaos
in Humanhattan” is written and drawn for millennials. If you aren’t a
millennial in your age or in your soul, you might find it flippant or
upsetting. To my way of thinking, Kaylin addressed that when she wrote her book
and blog’s subtitle – “Cancer is not Funny … Cancer is Hilarious.”<span style="mso-spacerun: yes;"> </span>If that line doesn’t resonate with you, don’t
read this book.</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">But
it you are a millennial, in age or attitude, you should read this book. The
story, by Kalin and Jon Solo, is in turns bleak, poignant, darkly comedic and
upsetting – like many cancer survivor stories. </span></div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">The
graphics by Jon Solo and Jade Takashi are terrific - powerful, complex, and
vivid. They are just as good as any Manga I’ve ever read.</span></div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">What
I really like about Chaos in Humanhattan is that Kalin and Jon capture all the
horrible emotions that cancer victims go through, from “Why me?” to “Oh no!” to
“I’m done” to “Now, I’m really pissed” and everything in between.</span></div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Here’s
a link to their Facebook site:
<a href="https://www.facebook.com/pages/Terminally-Illin-The-Comic-Book/178624932149196">https://www.facebook.com/pages/Terminally-Illin-The-Comic-Book/178624932149196</a> </span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com0tag:blogger.com,1999:blog-8737952463754564753.post-86326312157566172012016-03-31T11:58:00.000-05:002016-03-31T11:58:19.627-05:00SharpBrains Debunks the Top 10 brain and brain health myths<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">If your brain has been compromised
or injured or you somehow you seem genetically prone to Alzheimer’s, you may be
confused by all the information and <i style="mso-bidi-font-style: normal;">mis-</i>information
surrounding brain health, brain training and cognitive improvements. I know I
am.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Luckily, the whiz-bang
scientists at SharpBrains have recently posted this helpful article that debunks
brain training and health myths. You can read their original post here: <a href="http://sharpbrains.com/blog/2016/03/14/lets-debunk-these-ten-brain-myths/">http://sharpbrains.com/blog/2016/03/14/lets-debunk-these-ten-brain-myths/</a>
</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Or you can read the
following excerpt from that posting::</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">“<span style="color: blue;">Myth 1. Genes determine
the fate of our brains.</span></span></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Fact: Lifelong brain plasticity
means that our lifestyles and behaviors play a significant role in how our
brains (and therefore our minds) evolve physically and functionally as we get
older.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="color: blue;"><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Myth 2. We are what we eat.</span></span></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Fact: We are what we do,
think, and feel, much more than what we eat. (Even if, yes, nutrition plays a
role)</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="color: blue;"><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Myth 3. Medication is the
main hope for brain health and enhancement.</span></span></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Fact: Non-invasive
interventions such as aerobic exercise and meditation can have comparable and
more durable benefits, and free of side effects.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="color: blue;"><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Myth 4. There’s nothing we
can do to beat Alzheimer’s disease and cognitive decline.</span></span></div>
<span style="color: blue;">
</span><div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Fact: While nothing has been
proven to prevent the pathology of Alzheimer’s disease, there is abundant
research showing we can delay the onset of symptoms for years.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="color: blue;"><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Myth 5. There is only one
“it” in “Use it or Lose it”.</span></span></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Fact: The brain presents
many neural circuits supporting a variety of important cognitive, emotional,
and executive functions. Not just one. (Which is one of the reasons we should
stop thinking about magic pills and silver bullets)</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="color: blue;"><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Myth 6. Intervention XYZ can
help reverse your brain age 10, 20, or 30 years.</span></span></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Fact: The concept of “brain
age” is a fiction. Some brain functions tend to improve, and some to decline,
as we get older. Nothing can be said to “reverse brain age” in a general sense.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="color: blue;"><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Myth 7. There is a
scientific consensus that brain training doesn’t work.</span></span></div>
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of scientists. Consensus…that is certainly not. Brain training, when it meets
certain conditions, has been shown to transfer into real-world outcomes.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="color: blue;"><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Myth 8. Brain training is
primarily about video games.</span></span></div>
<div class="MsoNormal" style="line-height: 150%;">
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training, and bio/neurofeedback. Interactive media such as videogames can make
those interventions more engaging and scalable, but it is important to
distinguish the means from the end, as obviously not all videogames are the
same.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="color: blue;"><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Myth 9. Heart health equals
brain health.</span></span></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Fact: While heart health
contributes significantly to brain health, and vice versa, the heart and the
brain are separate organs, with their respective functions and relevant
interventions. What we need is to pay much more systematic attention to brain
health, so it can advance as much as cardiovascular health already has. </span></div>
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<br /></div>
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is working fine, why should I even pay attention to it?</span></span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%;">Fact: For the same reasons
you add gas to your car, and change the oil regularly– so that it works well,
and for a long period of time.”</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 7.0pt; line-height: 150%; mso-bidi-font-size: 12.0pt;">Copyright:
<a href='http://www.123rf.com/profile_gajus'>gajus / 123RF Stock
Photo</a></span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com1tag:blogger.com,1999:blog-8737952463754564753.post-11640080728887095892016-03-24T12:42:00.000-05:002016-03-24T12:42:15.985-05:00SharpBrains “Pervasive Neurotechnology Report<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Got
a brain problem? Wondering if some bright Silicon Valley startup company has a
solution or is at least working on a solution?</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Or
maybe you just want to know what’s next from brain/neurotechnologists and entrepreneurs
of all shapes and sizes.</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">If
so, the folks at SharpBrains has a report for you entitled: Pervasive
Neurotechnology. </span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Here’s a link to the description on their site: <a href="http://sharpbrains.com/pervasive-neurotechnology/">http://sharpbrains.com/pervasive-neurotechnology/</a>
</span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Still
not sure what this means? Have a look at this infographic (I love
infographics).</span></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwknpfgOTyoleoZwDvoll7OP2g14OxVFCS2-4Mt62WtLZbCB39nseTXm8rWNv6w-hjHQAqghG39Db9l1OIJjiLpOw9R_MfppADdLwVe3o5z1YqmrRmQNnJDA24Wx5KKJiWeZdYj6F_XcA/s1600/160324-pervasive+neurotechnology.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwknpfgOTyoleoZwDvoll7OP2g14OxVFCS2-4Mt62WtLZbCB39nseTXm8rWNv6w-hjHQAqghG39Db9l1OIJjiLpOw9R_MfppADdLwVe3o5z1YqmrRmQNnJDA24Wx5KKJiWeZdYj6F_XcA/s1600/160324-pervasive+neurotechnology.jpg" /></a></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com0tag:blogger.com,1999:blog-8737952463754564753.post-68466341277839930192016-03-21T12:47:00.000-05:002016-03-21T12:47:52.556-05:00Brain Tumor Art: Morbid & Fascinating<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPpo82gnKH8GRGSKWcX2rb0U7xbuQorXpb_ClHI0ypHXKrwL_PGTYcyxQrKcoM6D8oOHllxDHpDjT1i5yQTFfi0LiXNHHpTmWEab0YkTfghvCrxnULzFkCY1He6xeErBxHgm9T0rxn5ZU/s1600/160321-brain+tumor+art.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPpo82gnKH8GRGSKWcX2rb0U7xbuQorXpb_ClHI0ypHXKrwL_PGTYcyxQrKcoM6D8oOHllxDHpDjT1i5yQTFfi0LiXNHHpTmWEab0YkTfghvCrxnULzFkCY1He6xeErBxHgm9T0rxn5ZU/s320/160321-brain+tumor+art.jpg" width="320" /></a></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Art
is often used to deflect, diffuse and otherwise help us make emotional sense of
horrible events. Examples include memorials at traffic accidents, war memorials
and art for domestic violence survivors.</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">This,
however, is the first example I’ve found of the visual art of brain tumors.
According to Corrine Segal a PBS News hour post - <a href="http://www.pbs.org/newshour/art/art-brain-tumors/">http://www.pbs.org/newshour/art/art-brain-tumors/</a>
- “…that’s the surprising beauty of ‘Connecting Narratives,’ artist Dr. Immy
Smith’s project to bring new attention to brain tumors and the dangers they
pose.</span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Smith,
who studied biomedicine before earning a doctorate in pharmacology, is a
artist-in-residence at the Brain Tumour Research Centre at the University of
Portsmouth in the U.K. There, she worked with the lab scientists to develop an
exhibition visualizing the often-unseen issue of treating brain tumors.” </span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Segal
goes on to write that “The exhibition, currently on view at the Aspex Gallery
in Portsmouth, (UK) consists of two parts. For the first, Smith created 121
paintings to represent the more than 120 types of brain tumors that exist. She used
two colors meant to symbolize the two types of cells, neural and glial, from
which brain tumors can arise. ‘Just as you can make many patterns from just two
colors of ink by blending them in different ways or in different amounts, there
are many types of brain tumors arising from differential expression of genes in
just two cell types,’ she said.”</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Her
next step was, I thought, quite smart and moving.</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">“Then,
she created large-scale ink drawings to which visitors can add their own lines
using white-board markers. Both pieces comment on the complexity of brain
tumors, providing a visual reminder of why they are so difficult to treat…”</span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Here’s
her great summary of the cruelty and complexity of brain cancer:</span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">“They’re
really devastating diseases. They’re one of the only cancers that can directly
affect your cognition and personality…”</span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com4tag:blogger.com,1999:blog-8737952463754564753.post-78158644395658140532016-03-15T14:54:00.000-05:002016-03-15T14:55:20.382-05:00ABTA – “CARING FOR THE CAREGIVER” WEBINAR<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhS5vAsJwp4Hfa37g3olodGhO7WnU5Avyn8CfDDu7EhhsvomrhZJnXGOdjIb4I2idSuwhl0zJBtLWpM6txvCMjOR-ETvQg2h9z0wx9Cc-QL5DQ3xfr1W4ZtQ_676jnIGP3JpSBT88CQAt8/s1600/160315-caring+for+the+caregiver.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="315" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhS5vAsJwp4Hfa37g3olodGhO7WnU5Avyn8CfDDu7EhhsvomrhZJnXGOdjIb4I2idSuwhl0zJBtLWpM6txvCMjOR-ETvQg2h9z0wx9Cc-QL5DQ3xfr1W4ZtQ_676jnIGP3JpSBT88CQAt8/s320/160315-caring+for+the+caregiver.jpg" width="320" /></a></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">I
applaud the American Brain Tumor Association for their series of webinars on
brain tumor related topics. For many victims, caregivers, family members and
friends of brain tumor-impacted folks, jumping in a car and driving to a
seminar at some far away (or even near) location is often not an option. So the
insight of providing relevant and important information through webinars that you can view at home is
great.</span></div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">This
is the blurb on their upcoming webinar entitled “Caring for the Caregiver”:</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">“Learn
more about caring for the caregiver, including: </span></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Challenges
faced by caregivers, such as fatigue, serious role changes, depression and
grief related to the trajectory of a brain tumor</span></div>
<ul style="text-align: left;">
<li><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">How
to cope with their loved one’s sudden or significant neurological and
functional changes</span></li>
<li><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Short-
and long-term strategies to manage these challenges</span></li>
<li><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">How
to find educational, financial and emotional support </span></li>
<li><span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Ask
our expert, Vicki Leff, MSW, LCSW, ACHP-SW, questions and get the answers you
need"</span></li>
</ul>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">And
here’s the registration link:</span> <span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;"><a href="https://attendee.gotowebinar.com/register/1730607485354015746">https://attendee.gotowebinar.com/register/1730607485354015746</a>
</span></div>
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<br /></div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 6.0pt; line-height: 150%;">Copyright:
<a href='http://www.123rf.com/profile_iqoncept'>iqoncept / 123RF Stock
Photo</a></span></div>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com1tag:blogger.com,1999:blog-8737952463754564753.post-21369494569355936822016-03-09T10:00:00.000-06:002016-03-09T10:00:40.092-06:00U.S. President Jimmy Carter Stopping Immunotherapy Treatment<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcyiRhMsi3-EP5wwLw2Iv0lHQqbO-ozrIa-tO3Nhzj7g9iOFrN0_nREnNEaCgPWcvZPxNsRDSYK2bi-xHcLW8aPIxqp6V7UkwonYaCkSRcWg5ic_ZSfD4rdu0_nk5xEo-blgYWEVFOwXE/s1600/160309-President+Jimmy+Carter.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="134" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcyiRhMsi3-EP5wwLw2Iv0lHQqbO-ozrIa-tO3Nhzj7g9iOFrN0_nREnNEaCgPWcvZPxNsRDSYK2bi-xHcLW8aPIxqp6V7UkwonYaCkSRcWg5ic_ZSfD4rdu0_nk5xEo-blgYWEVFOwXE/s320/160309-President+Jimmy+Carter.jpg" width="320" /></a></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">Here’s the good news, ABC
News reports that “Just months after finding out he had metastatic cancer,
former President Jimmy Carter announced this weekend that his doctors have said
he no longer needs cancer treatment thanks in part to a groundbreaking new kind
of medication that trains the immune system to fight cancer tumors.” <span style="font-family: "arial" , "sans-serif";">F</span>or the
full story see <a href="http://abcnews.go.com/Health/remarkable-cancer-treatment-helped-jimmy-carter-combat-brain/story?id=37467459">http://abcnews.go.com/Health/remarkable-cancer-treatment-helped-jimmy-carter-combat-brain/story?id=37467459</a></span></div>
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</span></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">This adds more evidence to
the theory/findings/belief that immunotherapies are the next best weapon for
fighting cancers of any kind. </span></div>
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<br /></div>
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<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">According to Gillian Mohney,
who wrote the posting on the ABC News website, “Carter announced that his
doctors are stopping his immunotherapy treatment called pembrolizumab after they
saw no signs of tumors over a period of three months. While he has no evidence
of the disease, doctors will monitor Carter closely to see if the cancer
reoccurs, a representative for the former president said.” </span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">She goes on to write that
The drug works as a ‘checkpoint inhibitor,’ altering certain pathways in the
immune system so that the antibodies can identify and fight any tumors in the
body the way they might fight a virus or cold, experts said. The medication is
much less toxic than chemotherapy, but it can react in colon, liver or lung
inflammation, according to published studies. Researchers are still trying to
determine how long the medication can prompt the immune system to keep
fighting.”</span></div>
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<br /></div>
<div class="MsoNormal" style="line-height: 150%;">
<span style="font-family: "arial" , "sans-serif"; font-size: 12.0pt; line-height: 150%;">I’ve written about immunotherapies
and their potential before. If you’re interested in more information, Google
immunotherapies, or watch the ABTA webinar on immunotherapies for brain tumors:
<a href="http://www.abta.org/brain-tumor-information/anytime-learning/?referrer=https://www.google.com/">http://www.abta.org/brain-tumor-information/anytime-learning/?referrer=https://www.google.com/</a>
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John's Brainhttp://www.blogger.com/profile/01111126060462164553noreply@blogger.com1tag:blogger.com,1999:blog-8737952463754564753.post-27372435245454554322016-03-02T10:18:00.004-06:002016-03-02T10:18:47.705-06:00The ABTA Online Seminar on Brain Tumor Causes<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJckrFIiurPdF70_4fP6BPhS3oN2nVwPD43YkYCFVvdhx-MCpmLWnZuaeSJ934tLYflpwMtnPeQL_pF4_vbZCzdzA4ixqTq_25A2u8BsH-DV0f06MCyNqOvTRRqRwYxdGVuMlcYhKOFLE/s1600/160302-ABTA+causes+of+brain+tumors.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="157" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJckrFIiurPdF70_4fP6BPhS3oN2nVwPD43YkYCFVvdhx-MCpmLWnZuaeSJ934tLYflpwMtnPeQL_pF4_vbZCzdzA4ixqTq_25A2u8BsH-DV0f06MCyNqOvTRRqRwYxdGVuMlcYhKOFLE/s320/160302-ABTA+causes+of+brain+tumors.jpg" width="320" /></a></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Why
me? What did I do wrong? What caused my (or my loved one’s) brain tumor? </span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">I
thought that maybe I got mine from falling </span><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;"><span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">on some black
ice </span>and whacking my head on the sidewalk. But maybe, just maybe, it was all those annual dental X-rays I got growing
up? </span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Other
common worries include the effects of allergies, antihistamines and cell
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">In
this free, online American Brain Tumor Association webinar, Ms. Jill S. Barnholtz-Sloan, PhD, Associate Director for
Bioinformatics at Case Western Reserve University discusses all the statistics
and evidence surrounding the incidence and possible cause of different types of
brain tumors.</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">Like
almost everything else associated with cancer and brain tumors, the answers
aren’t particularly clear-cut. </span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">At
the same time, I want to make sure all of you know about this webinar, so here’s
the link: <a href="https://www.youtube.com/watch?v=G8lG8nWwHz0&feature=youtu.be">https://www.youtube.com/watch?v=G8lG8nWwHz0&feature=youtu.be</a>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">John</span></div>
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<br /></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 12.0pt; line-height: 150%; mso-bidi-font-size: 11.0pt;">FYI – Dr. Barnholtz-Sloan uses precise and somewhat complex medical terms in her
talk, which can be off-putting to some. </span></div>
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