Friday, September 19, 2014

“And So There Must Come an End” – The Final Charlotte Kitley Blog Post

In this unfair battle with cancer, I often feel like we’re battling some relentless, unstoppable, demonically powerful foe who has weapons we don’t understand let alone are able to defeat.

It’s a villain that’s dragged too many wonderful people into their grave before their time. And when that time comes, I hope I have the grace and fortitude and courage to face that defeat like Charlotte Kitley. Here is a link to the final post from her blog entitled “Living life with love, laughter and Stage 4 Bowel Cancer”: http://www.huffingtonpost.co.uk/charlotte-kitley/bowel-cancer-charlotte-kitley_b_5836238.html

Here’s one paragraph from that post which was so poignant and sorrowful and well-written that I just have to share it with you:

“As you read this, I will no longer be here. Rich will be trying to put one foot in front of the other, to get by, a day at a time, knowing I will no longer awake next to him. He will see me in the luxury of a dream, but in the harsh morning sun, the bed will be empty. He will get two cups from the cupboard, but realise there is only one coffee to make. Lucy will need someone to reach for her hairband box, but there won't be anyone to plait her hair. Danny will have lost one of his Lego policeman, but no one will know exactly which one it is or where to look. You will look for the latest update on the blog. There won't be one, this is the final chapter.”

Copyright: <a href='http://www.123rf.com/profile_gladkov'>gladkov / 123RF Stock Photo</a>

Tuesday, September 16, 2014

Living with Seizures

If you’ve had a brain tumor, seizures are probably a worry. So particularly I’m interested in this upcoming American Brain Tumor Association webinar entitled “Living With Seizures” scheduled for Tuesday, September 30, 2014 1:00 PM - 2:00 PM CDT.
Here’s some verbiage from the ABTA email promoting the event: 

“Join Kathy Lupica, MSN, CNP of Cleveland Clinic Burkhardt Brain Tumor & Neuro-Oncology Center as she presents, Living with Seizures. Ms. Lupica will discuss seizure triggers, first aid, medication choices, side effects and prevention. This webinar includes an online Q & A session with  Ms. Lupica. The webinar will also be recorded and the link will be sent to all registrants after the live session.” https://www3.gotomeeting.com/register/566501806

Copyright: <a href='http://www.123rf.com/profile_lightwise'>lightwise / 123RF Stock Photo</a>

Saturday, September 13, 2014

GBM Research Project: Caregivers/Patients Requested



I got this email today from Rachel Geltman of the Video Chat Network. She wants to interview GBM victims/caregivers. I don’t know Rachel or her company, but I want to help out victims and caregivers. As such, I’m posting this. Since I suspect many of you could use a bit of extra cash, here’s some quotes from her request:

“Hello John,

By way of introduction, my name is Rachel Geltman and my company is Video Chat Network (videochatnetwork.net).  We are an online marketing research company using the latest in video chat technology to conduct virtual market research interviews.  We have been engaged by many health care agencies and pharmaceutical clients to conduct research on their behalf for a wide range of medical conditions with health care professionals, caregivers and patients.

We are currently engaged in a project among Caregivers of patients and patients with Glioblastoma Multiforme (Brain Cancer).  We would like to speak with 4-5  anywhere in the US.”

Now here’s the part that involves some $. 

“We will also compensate the Caregivers/Patients $125 to participate in a 45 minute interview via webcam.  We could conduct these interviews with just one of them by themselves or both of them together.  All they will need to have is a working webcam/microphone and a strong internet connection to participate.  Ideally we would like to start these interviews this coming week (week of 9/15) but can also conduct them the
following week as well (week of 9/22) and will schedule them at their convenience. 

We have a lot of experience conducting health care/pharmaceutical research (http://videochatnetwork.net/pharmaceutical.php) and will take good care of the participants throughout the process. 

Please shoot me back an email, or call me at 917-207-7740, if you are interested in helping us out.

Best regards,

Rachel Geltman”

I think this is first come, first interviewed.


John


PS – She wants to compensate me if any of you sign up, but I told her to donate whatever $ she would give me to the American Brain Tumor Association – www.abta.org. If you have an extra nickel or two, consider doing the same.
PPS - I'm also a big fan of Meningioma Mommas - http://www.meningiomamommas.org/ and It's Just Benign - http://www.itsjustbenign.org/ 
Copyright: <a href='http://www.123rf.com/profile_orson'>orson / 123RF Stock Photo</a>

Thursday, September 11, 2014

“We were optimistic when we were told that some people survived two years or more…”

“There is life after being told you have brain cancer” said Arkesden resident Jim Miles to a reporter from the Saffron Waldron Reporter: http://www.saffronwaldenreporter.co.uk/news/there_is_life_after_being_told_you_have_brain_cancer_arkesden_resident_jim_miles_shares_his_story_1_3738929

Here's how this article starts: "For Jim Miles life is about enjoying the simple things. Walking his dogs with wife Cathy, playing golf, and writing his blog.
Above all, life is about spending time with family and friends and making the most of every day.

Every day counts because Jim is dying from brain cancer.”

And how is Jim spending his few remaining moments?

The article notes that “…Jim is alive today because of the pioneering surgery at Addenbrooke’s Hospital in Cambridge.

The neurosurgical microscope used could extend – and maybe save – many other lives, but to meet the demand, £325,000 must be raised to purchase another.

That is what Jim is focused on.”


Monday, September 8, 2014

A new tool for fighting GBM

Yes, this looks like a laser point … and that’s good. 

Why? According to a recent ScienceDaily.com article, Moritz F. Kircher and colleagues at Memorial Sloan Kettering Cancer Center have developed a new handheld device to “…detect "Raman nanoprobes" with very high accuracy.”

According to the article, “These nanoprobes are injected the day prior to the operation and go specifically to tumor cells, and not to normal brain cells. Using a handheld Raman scanner in a mouse model that mimics human GBM, the researchers successfully identified and removed all malignant cells in the rodents' brains” (in a test).

Want to read more?  Here’s a link:  http://www.sciencedaily.com/releases/2014/09/140903105759.htm




Illustration Credit: Moritz Kircher