Tuesday, July 29, 2014

Thursday, July 24, 2014

GBM: Where to find more detailed (survival) stats?

Everybody I’ve met who’s had a brain tumor wants to know the stats: what are my odds? How long will I live? What if I eat lots of chia seeds? I’m a stage III GBM, what are those odds? 


The discussion thread was started with the following questions: “I've read all the general stats for a grade IV GBM, but where can I find more detailed information? For instance, how does the survival rate differ for operable vs. inoperable tumors? How does it differ by age group? Is there a site or source that gives details such as these?



Copyright: <a href='http://www.123rf.com/profile_gabivali'>gabivali / 123RF Stock Photo</a>

Tuesday, July 22, 2014

This Made Me Sad: It’s Just Benign.com is on Break

I’m worried. The wonderfully, fierce, tenacious Beth Rosenthal appears to be fighting another health issue. Here’s an email I just received:

“We at It's Just Benign hope you're enjoying the summer. We regret to tell you that IJB is temporarily on a break. Beth Rosenthal, the founder & Executive Director, has been ill for a few months and needs to take care of herself. Hopefully she'll be back on her feet in a few weeks. She apologizes for not sending out thank you letters, returning emails, etc. over the last few months but, she's not up to it. Unfortunately, no one presently understands how to run IJB like Beth does. Therefore, please accept our apologies while she take a much needed break and hopefully she'll regain her strength soon. If you need to reach Beth, email her at ItsJustBenign@gmail.com and she'll reply as promptly as she can.”

If you know Beth, please wish her the best, contribute some ¢ or even some $ to her website and, if you are so inclined, pray for her.

I will.

John

PS - Here's a link to her website: http://www.itsjustbenign.org/

Copyright: <a href='http://www.123rf.com/profile_peerayot'>peerayot / 123RF Stock Photo</a>

Sunday, July 20, 2014

Defeat GBM Research Collaborative




This is a youtube video about the Defeat GBM mission.
The video is a bit slow and bit wonky for those of us interested in fast talk and visual action but, at the same time, somehow appropriate.

According to the National Brain Tumor Society website, “Glioblastoma multiforme (GBM) research is on the cusp of genetic and molecular discoveries that will forever alter current diagnostic, prognostic, and therapeutic achievements. A highly aggressive and complex brain tumor type, GBM tumors are also one of the most devastating forms of cancer, affecting thousands of Americans each day.

To address this growing need, the National Brain Tumor Society in 2013 launched the Defeat GBM Research Collaborative, a multi-faceted and concentrated research-based effort, which aims to double the five-year survival rate of GBM patients -- in just five years. The Initiative will drive the advancement of this therapeutic development area to better understand how to combat its resistance and adaptability, and deliver new and effective treatments to improve patient survival.”

Monday, July 14, 2014

Healthline’s Best Cancer Blogs of 2014


This list is posted on the Healthline website. The post was written by Ann Pietrangelo, the winners were selected by Tracy Rosecrans and medically reviewed by George Krucik, MD, MBA: http://www.healthline.com/health-slideshow/best-cancer-blogs#1
 
Many of the blogs are sponsored/hosted by companies, e.g. the Cancer Treatment Centers of America blog: http://www.cancercenter.com/community/discussions/blog/

And while that doesn’t mean the information is less useful, I wanted you to know that upfront. Here’s the rest: