- No help whatsoever (which is hugely disappointing)
- An overwhelming amount of disorganized help
Tuesday, January 15, 2013
"Lotsa Helping Hands" – a great idea for brain tumor victims and caregivers
As I talk to brain tumor victims, I keep hearing that victims have two kinds of problems once friends, family and co-workers know about their disease:
While I don’t have any suggestions for the “no help” problem, “Lotsa Helping Hands” helps you and your family organized all the good souls who want to help you, but don’t know what your need, when you need it or how to deliver it.
According to the MyCaringLink website - https://abta.lotsahelpinghands.com/caregiving/home/ - “MyCaringLink is a private, online caregiving coordination service that allows family, friends, neighbors, and colleagues to assist with the daily tasks that become a challenge during a brain tumor journey.”
What kind of daily tasks? Well, if memory serves me right, almost everything, e.g. rides to treatments, meal delivery, babysitting (both children and the victim) “and more.”
The personal website also allows you to customize sections for posting journal entries and photos so that everybody is updated on your progress (or challenges).
Actually, Lotsa Helping Hands does a better job of explaining who they are and what they do than I can, “Lotsa Helping Hands powers online caring Communities that help restore health and balance to caregivers’ lives. Our service brings together caregivers and volunteers through online Communities that organize daily life during times of medical crisis or caregiver exhaustion in neighborhoods and communities worldwide. Caregivers benefit from the gifts of much needed help, emotional support, and peace of mind, while volunteers find meaning in giving back to those in need.”