Showing posts with label its just benign. Show all posts
Showing posts with label its just benign. Show all posts

Sunday, April 6, 2014

“'Benign' Does Not Mean 'Harmless' - Exploding the Myth Behind 'Benign' Brain Tumors”

That’s the title of an insightful and poignant article written by Emma Flixton and posted on the home page of It’s Just Benign: http://www.itsjustbenign.org/
Here’s the first paragraph: 

“The phrase ‘brain tumor’ brings panic and despair, the word ‘benign’ intense relief. So great is this sense of relief, in fact, that many people appear to equate the ‘benign’ status of a brain tumor with a declaration that the condition is nothing to worry about – or even with a sort of cure. The implication of the word ‘benign’ in many people’s view is that they no longer have to worry about and support the sufferer. This view fails to take into account that the symptoms which drove the sufferer to the doctor in the first place are usually still present, despite the tumor’s ‘benign’ status, and often still causing significant problems. Indeed, once a tumor is classified as benign, friends and family members who have previously supported the sufferer through their affliction may even come to think of the patient as a malingerer, making a mountain out of a molehill, and not in need of support. 

The prevailing ‘Oh, but it’s benign! You’re fine!’ attitude can be intensely frustrating for people who have to live with these supposedly ‘innocent’ brain tumors. Just because such tumors may not be immediately life-threatening (although some of them do, in fact, present a significant threat to life) does not mean that they are not life-affecting.”
 
To read the rest of the article go to the home page of http://www.itsjustbenign.org/ To read the article you’ll need to become a member and pay either the $25 annual fee or a lifetime fee of $75.

 In either case it’s a bargin, especially if you are a victim or caregiver or friend/relative of either.

Image credit: <a href='http://www.123rf.com/nobilior'>nobilior / 123RF Stock Photo</a>

Wednesday, June 5, 2013

Got Meningioma? Get the T-Shirt!


Here’s a quick quiz:

  1. Do you have meningioma?
  2. Are you a Meningioma survivor?
  3. Do you know a meningioma survivor? 
  4. Do you wish that Beth Rosenthal’s wonderful Its Just Benign website was prospering and would continue to prosper and help meningioma victims and caretakers and friends and family?
If you answer "yes' to any of these questions, head over to http://www.cafepress.com/itsjustbenign and check out the spiffy¹ new IBJ T-shirts, clothing, mugs, shopping bags, Frisbees, hats and other goodies.

Doing so will help IBJ - a great nonprofit - and enrich your soul. If you don’t have a soul, you might be able to buy one on the website because she seems to have everything else you’d need.

John

PS – IBJ also has great member forums, blog opportunities, a “survivor spotlight” and lots of other great stuff. 

¹I’m always somewhat confused as to the right word to use in this circumstance. Feel free to reread the sentence using “righteous,” “cool,” "groovy," “fabulous,” “neat-o,” “wicked,” or “hip.” Now if I could just work “snap” into the sentence, I’d feel really awesome.