The
Gabby Giffords interview is still rolling around in my head and churning up
lots of thoughts.
One
that I keep coming back to is the importance and challenge and sheer dreariness
of rehab.
Upon
returning home after my second brain surgery for meningioma, I decided that my
new full-time job was rehabilitation.
But
here’s the problem, rehab is a pain. I’ll
bet you dollars to donuts that everybody in rehab will tell you that there is
nothing they like about rehab.
Rehab
is hard, boring, repetitive, slow, exhausting and, in the short-term, not
particularly rewarding. Perversely, though, it’s also incredibly important.
The
videos of Gabby Giffords while she's in rehab are almost painful to watch – especially the
bits where we see her flounder as she relearns facial expressions (like “sighing”)
or relearns the simplest of words (like “Chair”).
It
reminded me of trying to tackle a seemingly easy Sudoku puzzle while in the hospital
and, after a half an hour or so, figuring out that I couldn’t figure it out.
One
of my greatest fears about brain surgery was that I’d survive, but wind up as
some smaller, less competent, slower version of what I once used to be. My
early cognitive tests seemed to support those fears, which just terrified me.
As
my fear drove me to tackle rehab like a dog with a rag, I realized that some
days were good days and some days I looked at what I had done…and had to give
myself a “D-“.
I
used to tell people that rehab was more of a marathon than a sprint because it
took so long to get anywhere. But I was wrong.
It’s more of a steeplechase than a marathon. Why? Because
while the race is long, every so often you have to jump a hurdle – e.g. a Sudoku
puzzle or a therapist exam or a driver’s test. Sometimes you fall on your face
in the mud – like Gabby trying to find the word for “chair” – and sometimes you
clear the hurdle. Falling on your face in the mud, though, isn’t a reason for
quitting the race. Like Gabby, you have to wipe the mud off, lift your head up
and start running.
2 comments:
Hey John!
Why not write a short story called Steeplechase about your observations. Don't let the point be obvious - make it a subtle analogy. And your obsevation applies to a broader audience than those recovering from brain trauma/tumors. It applies to many of the situations we face in life. With some notable quotes I'll bet the public would love it.
If you don't want to write it let me know, and I'll tackle it.
Phil F
Great idea! I think I'm going to continue to pitch my memoir (different than my blog)and see what happens.
John
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