Have
a brain tumor or know somebody who has a brain tumor? Want to connect them with
other brain tumor victims or caregivers? Experience
Project is another online forum for sharing brain tumor experiences. Here’s
their link: http://www.experienceproject.com/groups/Am-A-Brain-Tumor-Survivor/8106
Experience Project describes
itself as “…the world's largest living collection of shared experiences and the
premier passions-based network, experience project is a comfortable and
supportive place for individuals to share and connect with others around the
things that matter to them most. With over 24 experience categories, experience
project is the definitive online social conversation destination for people to
connect with others who really get ‘it’ -and them.”
Are
they the world’s largest? Who knows? But their website claims that they have
nearly 36 million “Life experiences from people like you.” That seems like a
whole lot.
According to the site, “Armen Berjikly, a Stanford graduate, started experience
project after first creating a support community for multiple sclerosis
patients. How did he start down this path, you ask? Inspired by a friend's
diagnosis with the debilitating illness, Armen built a positive community
chartered on empowering patients through knowledge. Along the way, the forum
portion of the site became the most powerful tool of all. It gave voice to a
group of people known to suffer in silence, and the opportunity to be among new
friends, those who truly understood each other's challenges.”
If you try it and like it, please let me know.
My favorite brain tumor community sites are:
- American Brain Tumor Association site: http://www.abta.org/
- “It’s just benign” website: http://www.itsjustbenign.org/
- The Cancer Survivors Network: http://csn.cancer.org/
- National Brain Tumor Society: http://www.braintumor.org/
- Being Cancer Network: http://www.beingcancer.net/cancer-blogs-lists/brain-cancer/
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