I had a hard time with that
advice for a while – how could they enjoy life knowing that she had
this horrible disease eating away at her, inexorably dragging her into the grave?
I now think differently
about this advice. I don’t believe the advice is trite or Pollyanna-ish or
divorced from reality. I think its sound advice that reminds us all to cherish
what health and family we have while they are with us.
I know of no other story
that tugs on my emotional heart strings as hard as stories about children with cancer,
like many of the Ependymoma stories you’ll find on the CERN website.
I’ve attached a link to one such story that
brings this idea to life - a story about little four-year-old “Sophia L.” with Intramedullary
Ependymoma. You can read about her and her mother here: https://cern-foundation.org/?page_id=6411
1 comment:
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