Showing posts with label Suzy Becker. Show all posts
Showing posts with label Suzy Becker. Show all posts

Thursday, January 21, 2016

“The Terrible Beauty of Brain Surgery”


A good friend of mine sent me a link to this NY Times article by Karl Oveknausgaard, which is subtitled “A witness in an operating room where the patients are conscious.” Here’s the link: http://www.nytimes.com/2016/01/03/magazine/karl-ove-knausgaard-on-the-terrible-beauty-of-brain-surgery.html
 
The article is about a famous British neurosurgeon, Henry Marsh who allowed Oveknausgaard  to interview him and watch in Tirana, Albania as he demonstrated a surgical procedure he helped pioneer, “… called awake craniotomy, that had never been performed in Albania. The procedure is used to remove a kind of brain tumor that looks just like the brain itself.” (Interestingly, the article never mentions the type of brain tumor.)

The “awake craniotomy” procedure is used to remove a kind of brain tumor that looks just like the brain itself. Oveknausgaard writes that “Such tumors are most common in young people, and there is no cure for them.”

He goes on to write that “In order for the surgeon to be able to distinguish between tumor and healthy brain tissue, the patient is kept awake throughout the operation, and during the procedure the brain is stimulated with an electric probe, so that the surgeon can see if and how the patient reacts.”

This just makes my skin crawl.

I’ve first read about this type of surgery in Suzy Becker’s book, “I’ve had brain surgery, what’s your excuse?” and the thought gave me the chills then, and I’m still chilled reading about it years later. http://www.amazon.com/Brain-Surgery-Excuse-Becker-Paperback/dp/B00POEURZ0/ref=sr_1_fkmr1_2?ie=UTF8&qid=1453403913&sr=8-2-fkmr1&keywords=i%27ve+had+brain+surgery+what%27s+your+excuse+suzy+becker   

So why do this? That question is definitively answered when Oveknausgaard notes that: “The procedure is used to remove a kind of brain tumor that looks just like the brain itself. 

Such tumors are most common in young people, and there is no cure for them.

In order for the surgeon to be able to distinguish between tumor and healthy brain tissue, the patient is kept awake throughout the operation, and during the procedure the brain is stimulated with an electric probe, so that the surgeon can see if and how the patient reacts.”

Now if doesn’t make you a bit nervous, Oveknausgaard writes that Marsh “… explained the awake craniotomy procedure, saying that for a neurosurgeon, it is a constant temptation to try to remove the entire tumor, but if you go too far, if you remove too much, the consequences can be severe. It may lead to full or partial paralysis of one side of the body or other functional impairments or personality changes. When the patient is awake, this allows the surgeon first of all to determine where the dividing line lies, and second, to observe the consequences of the procedure directly and immediately, and stop before any serious damage is done.”

For those of you who love morbid details, here’s a sneak couple of sentences by Oveknausgaard writing about the operation itself: “The silence was total. The single focus of attention was a head clamped in a vise in the middle of the room. The upper part of the skull had been removed, and the exposed edge covered in layer after layer of gauze, completely saturated with blood, forming a funnel down into the interior of the cranium. The brain was gently pulsating within. It resembled a small animal in a grotto. Or the meat of an open mussel.”

The article is fascinating, upsetting, informative and penetrating (in more ways than one). 


Picture: Dr. Mentor Petrela and Dr. Artur Xhumari close up the head of Ilmi Hasanaj. The author, Karl Ove Knausgaard, stands second from right.
Credit Paolo Pellegrin/Magnum, for The New York Times

Wednesday, March 14, 2012

I’ve got a brain tumor, what’s your excuse? Want the T-Shirt?

Do you love that line from Suzy Becker’s book? Want the T-shirt?  Well, now you can buy it at http://www.cafepress.com/medtees

Medtees.com is an online enterprise run by Dr. Westby Fisher, Director of Cardia Electrophysiology at NorthShore University HealthSystem at Evanston hospital. 

Their website description says it all: “At MedTees.com, we pick up where diagnosis and treatment leave off. That is, what happens AFTER the dust settles and you go home and they CAN'T fix what's wrong or the fix is tough to live with.
Life happens. Illness happens. In fact, illness will eventually be inevitable for all of us. As the Baby Boom ages, we are becoming aware that living with illness is already a reality for more and more people. Illness in America is still "in the closet." How? Conventional wisdom says if illness has to happen at all, illness should be overcome, fixed, and left behind. We have few role models and few realistic stories about living with a less-than-perfect body, or less-than-perfect health. How we choose to deal with the cards that life gives us is what this site is all about. Whether it is through humor (sometimes the best medicine), support, or just increasing awareness of the diseases themselves, MedTees.com hopes to empower people to live their lives to the fullest. This is where humor, support, patient-to-patient interaction can make the difference. A portion of our proceeds from every shirt helps support a charitable organization related to the shirt's design“

They also have a nice guarantee:  “We guarantee that 10% of proceeds go to the charity designated in the description of the section or shirt. The remainder goes (for now) to support the expenses to run this site. If our proceeds should exceed our expenses, the overage will be also applied to charities for whom merchandise is earmarked.”

Several are witty and written by patients themselves. My current personal favorite is: “The nice thing about being senile is that you can hide your own Easter Eggs.”

Friday, February 24, 2012

My favorite brain tumor, cancer and traumatic brain injury memoirs

There is something about having a brain tumor that leads to interesting, provocative and brutally honest tales of brain tumors and injuries.

Here’s my top six. I’ve read every book on this list with the exception of Curveball, which I just got in the mail yesterday.  I like them all and, somewhat surprisingly, like them for different reasons.

Cancer Vixen by Marisa Acocella Marchetto brings unexpected glam and style to the genre. I found the graphic novel format powerful and emotionally involving. After finishing this book I wanted to have a beer with her husband who, for all his restaurant fame and fortune, seems like a really likeable guy. All the same time, it’s a bit “New Yorky”.

Curveball: When Life Throws You a Brain Tumor, by Liz Holzemer, is something I’m looking forward to reading. Her blog - http://wwwascrewloose.blogspot.com/ - is completely different from the usual brain tumor rant. I’m also a fan of her personal commitment to “give back” through her 501(c) (3) not-for-profit organization, Meningioma Mommas - http://www.meningiomamommas.com/donations

Gabby’s book, Gabby: A Story of Courage and Hope by Gabrielle Giffords, Mark Kelly and Jeffrey Zaslow - is at one and the same time horrifying and inspiring. You just gotta love her and her husband.

I also loved Suzy Becker’s book - I Had Brain Surgery, What's Your Excuse? - and her unrepentant honesty about her disease, her emotional roller coaster ride, her tenacity and her drawings. (I also have a soft spot in my heart for bikers and those who give back – and Suzy is both) She blends her writing and drawings into a complete story that words alone just couldn’t tell.

My Stroke of Insight by Jill Bolte-Taylor is, for me, the seminal work in the arena which combines personal journey with incredible scientific insights. I also want to start a fan club for her unbelievable mother.

Ms. Wisenberg’s blog and resulting book seems to have been on the vanguard of cancer blogs and, as you would expect given her literary background, creatively written. If you have a chance to listen to her speak in person, grab it. The time I saw her she brought the little statue/avatar her publisher made for her which, by itself, was worth the price of admission.

What have I missed?  What should I read next?  I’m interested in everybody’s comments, suggestions and recommendations.