Showing posts with label child brain cancer. Show all posts
Showing posts with label child brain cancer. Show all posts

Friday, January 8, 2016

New Neuroblastoma Treatment Coming (?)


I just read this article about a drug that could have a major impact on neuroblastoma, “one of the most common forms of childhood cancer.

It’s also a deadly form of childhood cancer.

This article, by Ms. Rachel Greco of the Lansing State Journal, is a well-written, detailed story about a tenacious doctor and researcher who was inspired by parents of young children with the disease who were searching for somebody, anybody who could help them. http://www.freep.com/story/news/local/2016/01/07/msu-prof-breaks-ground-childhood-cancer-discovery/75520838/?hootPostID=33dc1aaa9d7a71c51048311371c05ec0

One person who thinks DFMO is particularly promising is Dr. Randal Wada, medical director of the Pediatric Stem Cell Transplant Program at Kapiolani Medical Center for Women and Children in Hawaii and chief of its pediatric cancer division.

A former colleague of Bachmann's, Wada said his hospital will take part in the third-phase of the clinical trial for DFMO. He calls the re-purposed use of the drug "exciting."

"The results so far suggest that DFMO could have a significant impact on the survival rate of patients with aggressive forms of neuroblastoma," Wada said.

I’ve written this post because, as a father, I can’t imagine the sorrow and impact such a diagnosis would have on a parent. Actually, that isn’t true. I have a small glimmer of what that impact would be from this and other articles, and that glimmer leaves me heart-sick.

The other bit of sorrow I still have from reading this article is how long it takes for a potential solution to get to market; to get in the hands of doctors who have patients dying from the lack of an effective solution.

I’d add an emoji but there isn’t one sorrowful enough or sad enough or upsetting enough to represent my feelings for these victims and their parents.

Friday, February 28, 2014

“Secret gifts brighten Wheaton boy's battle against cancer”


“True charity is anonymous” – I vividly remember this quote of Major Charles Emerson Winchester III- in a poignant episode from the old MASH TV series.

It’s one thing to remember it and another to live it, to embody it, to do it. A nicely written article by Quan Truong in today’s Chicago Tribune tells of somebody, some amazing “secret pal who has deftly and secretly given numerous gifts to a young child with GBM and his family.  These two paragraphs tell you everything you need to know:

“Over 14 months, Dylan's secret pal sent more than a dozen packages for the boy and, often, for his three siblings and parents. They frequently appeared after Dylan's “really bad days” and tough chemotherapy treatments, Laurie Full said.

Packages would show up outside the front door, sometimes arriving when the family was at home, but never with any trace of the source's identity, other than the signature 'Dylan's Secret Pal.'"

If this thought makes you smile, makes your heart beat a bit faster or makes you want to learn more, click on this link: http://www.chicagotribune.com/news/local/suburbs/wheaton/chi-wheaton-secret-gifts-20140227,0,5617729.story

If not, as I have said in the past, quickly check yourself into an emergency room because your ticker has stopped ticking.

John

PS – Be sure to click on the link to the Tribune’s video about Dylin and his Mom.